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My Amyloidosis Pathfinder

MAP is a free, easy-to-use tool that captures your treatment preferences, goals, and challenges so you can effectively communicate with your amyloidosis care teams. You can also find and compare specialty treatment centers and receive personalized matches to clinical trials.

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Appointment Companion

Help your clinician further understand your treatment goals, preferences, and challenges at your next appointment.

Treatment Center Selector

Find and compare highly specialized amyloidosis treatment centers that best suit your individual needs.

Clinical Trial Finder

Get personalized matches to clinical trials and anonymously help researchers advance medical treatments.

How It works

Build a Conversation With Your Care Team

Quickly and easily share what matters most to you when it comes to your care. Develop your thoughts, prioritize your treatment goals and communicate any challenges. You may also save time in the waiting room by filling out any necessary health surveys in advance of your appointment.

In a matter of minutes your amyloidosis Appointment Companion captures the full you.

Discover Clinical Trials

Participating in a clinical trial is an invaluable way to get excellent medical care and play a part in advancing research for better treatments and a cure for amyloidosis.

MAP is designed to make it easy for you to find available trials, and – where trials do not yet exist – inspire researchers to focus on new areas of study.

Amyloidosis is a rare disease, and trials can take years to accrue which can dramatically slow down the process of evaluating a drug’s effect. The good news is more and more patients like you are becoming empowered to take part.

Browse & Compare Treatment Centers

When you are diagnosed with a rare disease like amyloidosis it can be hard to find physicians that are knowledgeable about your disease. Finding a treatment center that has treated patients like you is an important step toward making sure that you get the best care. MAP can help you find treatment centers, see what services they offer, their experience in treating patients like you and compare them to one another.

Created for you

Designed with amyloidosis patients and leading treatment centers, MAP helps solve some of the biggest challenges for patients just like you.

Join over 1,300 amyloidosis patients and caregivers using MAP today.

MAP is brought to you by the Amyloidosis Research Consortium (ARC), a leading foundation accelerating amyloidosis research, and Patient Discovery Solutions, a leader in patient-provider decision technologies.

What Amyloidosis patients are saying...

“This is a concrete tool to help patients get organized and feel less overwhelmed.”

“It helps me organize the subjects I wish to discuss with my physician. It helps me to focus on different aspects of treatment. It helps me recall any questions I want to ask during my appointment.”

“What I like most are the important questions that need to be addressed at your visit are asked ahead of time.”

“This is a quick way to prioritize your health and treatment goals so you stay on track during your specialist visit.”

“If you want to learn about how your disease affects your health and ask questions that focus on your treatment options, this is the tool to use.”

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Start using MAP today!


Brought to you by ARC

Powered by Patient Discovery

If you need help navigating MAP or just want support, our ARC amyloidosis team is here to help. Call anytime at 617-467-5170  9 am – 5 pm EST, Monday – Friday or send us an email at

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